Hypereosinophilic Syndrome Resource - Talking to Your Doctor about HES

HES Doctors

There are a number of doctors who specialize in different HES symptoms. Learn more

Your HES symptoms may require you to consult with one or several doctors to manage the disease. It is important to keep the lines of communication open with anyone who is involved in your care. By talking with your doctor, you can learn more about HES, its impact on your health and your particular treatment options.

Sometimes it is difficult to know what to say to your doctor. Below are some useful tips:

Make a list of questions that you want to discuss before you go for your visit.
Take a family member or friend to listen and take notes; this will help ensure that you are able to concentrate fully on discussing your condition.
Keep a journal to record any changes in the way you feel and share them with your doctor.

Questions You May Want to Ask Your Doctor

What is HES?
How is it diagnosed?
What is my diagnosis?
Is there a cure?
What are the treatment options available to me?
How soon should I start treatment?
How will treatment affect my daily life?
Are there any possible side effects that I should be aware of with my treatment?
What can I do to manage my condition effectively?
Where can I go for more information?
Are there support groups in my area?
Should I keep a journal of my progress and eosinophil counts?
Can I still exercise or maintain my exercise routine while I am being treated for HES?
Will I still be able to travel while living with this condition?
Are there any dietary guidelines I should consider?

Track Your Progress

Work with your doctor to develop a schedule of how often you need to have your eosinophil blood-levels tested and how frequently you should be monitored.
Record your eosinophil levels, results from doctor visits and any questions you might have for future visits in a journal.
Monitor and record any significant changes in your physical or mental health
If you are concerned about your progress, talk with your doctor so you can develop a treatment plan that works for you.
Ask your doctor if, or when, you should schedule a return visit to have your progress monitored.
Seek help from local support groups to effectively manage your condition.
Keep a record of helpful resources and information that can assist you in living with HES.